Advanced search
Start date
(Reference retrieved automatically from Web of Science through information on FAPESP grant and its corresponding number as mentioned in the publication by the authors.)

Understanding the needs of caregivers of persons with dementia: a scoping review

Full text
Queluz, Francine N. F. R. [1, 2] ; Kervin, Emily [1] ; Wozney, Lori [3] ; Fancey, Pamela [1] ; McGrath, Patrick J. [4, 3] ; Keefe, Janice [1]
Total Authors: 6
[1] Mt St Vincent Univ, Nova Scotia Ctr Aging, Halifax, NS - Canada
[2] Sao Francisco Univ, Campinas, SP - Brazil
[3] IWK Hlth Ctr, Halifax, NS - Canada
[4] Dalhousie Univ, Dept Psychiat, Halifax, NS - Canada
Total Affiliations: 4
Document type: Review article
Source: INTERNATIONAL PSYCHOGERIATRICS; v. 32, n. 1, SI, p. 35-52, JAN 2020.
Web of Science Citations: 0

Background: The number of people living with dementia (PWD) is increasing worldwide, corresponding with an increasing number of caregivers for PWD. This study aims to identify and describe the literature surrounding the needs of caregivers of PWD and the solutions identified to meet these needs. Method: A literature search was performed in: PsycInfo, Medline, CINAHL, SCIELO and LILACS, January 2007-January 2018. Two independent reviewers evaluated 1,661 abstracts, and full-text screening was subsequently performed for 55 articles. The scoping review consisted of 31 studies, which were evaluated according to sociodemographic characteristics, methodological approach, and caregiver's experiences, realities, and needs. To help extract and organize reported caregiver needs, we used the C.A.R.E. Tool as a guiding framework. Results: Thirty-one studies were identified. The most common needs were related to personal health (58% emotional health; 32% physical health) and receiving help from others (55%). Solutions from the articles reviewed primarily concerned information gaps (55%) and the education/learning needs of caregivers (52%). Conclusion: This review identified the needs of caregivers of PWD. Caregivers' personal health emerged as a key area of need, while provision of information was identified as a key area of support. Future studies should explore the changes that occur in needs over the caregiving trajectory and consider comparing caregivers' needs across different countries. (AU)

FAPESP's process: 17/13807-0 - AN APP FOR CARE TOOL: Subsidies for its creation
Grantee:Francine Náthalie Ferraresi Rodrigues Queluz
Support type: Scholarships abroad - Research Internship - Post-doctor