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What do advanced cancer patients know about their prognosis and what (and how) would they like to know

Grant number: 20/13203-0
Support Opportunities:Scholarships in Brazil - Scientific Initiation
Effective date (Start): December 01, 2020
Effective date (End): November 30, 2021
Field of knowledge:Health Sciences - Medicine - Medical Clinics
Principal Investigator:Carlos Eduardo Paiva
Grantee:Ana Clara Teixeira
Host Institution: Hospital do Câncer de Barretos. Fundação Pio XII (FP). Barretos , SP, Brazil

Abstract

End-of-life scenarios for incurable cancer patients should be viewed from the perspective of ethics and humanization, aiming at the patient's well-being. In this context, good doctor-patient communication is extremely important, as it positively impacts the patient's treatment decisions, allowing adequate care for that person and their reality. However, there are divergences in communication, caused by the professional's posture and / or by factors related to the patient, raising in the latter an inaccurate perception about his real health status, treatment and prognosis, negatively influencing the management of symptoms and his treatment decisions. The objective of the study is to evaluate in patients with advanced and incurable cancer the understanding of incurability, treatment goals and communication preferences about prognosis. It is an observational longitudinal study. Data collection will occur at the Department of Clinical Oncology at the Barretos Cancer Hospital. A total of 124 adult individuals with primary malignant solid tumors in the breast, gynecological, urological or gastrointestinal, will be consulted by the doctor according to the identification of disease progression or relapse, and who present ECOG-PS (Eastern Cooperative Oncology Group - Performance Status) 2 to 4. Doctors who consulted the study patients will also be included. Finally, doctors and patients will respond to questionnaires that aim to evaluate perceptions and opinions regarding the communication of bad news.

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Scientific publications
(References retrieved automatically from Web of Science and SciELO through information on FAPESP grants and their corresponding numbers as mentioned in the publications by the authors)
PAIVA, CARLOS EDUARDO; TEIXEIRA, ANA CLARA; MINTO LOURENCO, BRUNA; PRETO, DANIEL D'ALMEIDA; VALENTINO, TALITA CAROLINE DE OLIVEIRA; MINGARDI, MIRELLA; PAIVA, BIANCA SAKAMOTO RIBEIRO. Anticancer Treatment Goals and Prognostic Misperceptions among Advanced Cancer Outpatients. INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, v. 19, n. 10, p. 10-pg., . (20/13203-0)

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