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Living with cleft lip and palate: the experience of carrying

Grant number: 11/19520-9
Support Opportunities:Scholarships in Brazil - Scientific Initiation
Effective date (Start): May 01, 2012
Effective date (End): April 30, 2013
Field of knowledge:Health Sciences - Nursing
Principal Investigator:Giselle Dupas
Grantee:Gabriela van der Zwaan Broekman Castro
Host Institution: Centro de Ciências Biológicas e da Saúde (CCBS). Universidade Federal de São Carlos (UFSCAR). São Carlos , SP, Brazil


The current society in which we operate super values beauty, driving individuals to the frantic search for the perfect. In this context, to hold a malformation is an everyday experience and challenge not only of self-overcoming of limitations, but also to fight the stigma and exclusion imposed by the society. Disorders such as anxiety, depression, social phobia, and low self-esteem have a higher incidence in individuals with facial malformations. Facial appearance has a profound impact on people's social environments and may influence social interaction, personality development, and educational progress, reducing the quality of their lives. In this study, we chose to prioritize the general malformations, craniofacial anomalies, and more specifically the cleft lip and palate. As physical implications of cleft lip and palate are esthetic and functional impairment varies according to the type of cleft, and may also cause problems psychosocial that can be perpetuated throughout the life of the individual carrier. The rehabilitation process involves several cases of hospitalization, it is necessary for the action of a specialized interdisciplinary team, including the biopsychosocial aspects of the Individuals with cleft providing for their reintegration into society of this long process of rehabilitation is experienced patients with cleft and their families significant chronic stress of physical, emotional and social. The nursing care for the patient with cleft happens throughout the rehabilitation process. This must receive/accept the feelings demonstrated by the patient and his family and ensure a humanized, approach, engagement, creation of links, and support for the patient and família. Therefore, our proposal is to understand the experience of being with cleft lip and palate to meet your needs and act in the clarification and guidance from them. This is a qualitative study that is part of the social reality of the subject, working with the universe of meanings, motives, beliefs, and values, which corresponds to a deeper space of relations, processes, and phenomena that can't be reduced to the operationalization quantitative variables. In the context of qualitative research was chosen clinical-qualitative method, designed as a scientific means of investigation, and a particularization and refinement of generic qualitative methods of the humanities, which seeks to understand and interpret the meanings that individuals give to the phenomena of the field the binomial health and disease, proving to be adequate for cases in which such phenomena are complex, being a forum for personal, intimate and/or emotionally difficult to verbalize. To meet the amplitude of the proposed objective in this study will use the interview, which is the most used in the process of fieldwork, it allows to obtain the data either by nature objective or subjective research, and the use of narrative to work with data from the interviews with the subjects.(AU)

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